DISCUSSIONS

About the Book

The title of this booklet is Discussions because there is a real need to have some of these discussions when you are a complex or chronically ill patient. These need to take place between the patient and physician, the patient and family, and the patient and caregivers. It is not enough to say that those close to you understand what you would want in certain situations. It is amazing, although the subjects are diffi cult, that people handicap and burden others to make decisions about health care while never talking about these diffi cult topics. Some people feel that if they are discussed, then they will occur, much as people ignore talking about death, not wishing to “tempt it” into occurring. Presented in this pamphlet are very diffi cult but very important subjects that should be discussed more than once, and many should be ongoing discussions with caregivers and physicians. Many patients feel that if these discussions are so important, the doctor should bring them up and begin the talk. However, physicians are not trained to begin these discussions any more than patients are trained to do so, and the lack of communication on so vital a subject as types of treatment choices or feeding tubes can become critical decisions for others to make in chronically ill patients.

About the Author

PATSY BARNES has been a nurse for 40 years, 34 years in emergency medicine and 6 years in hospice. She is the former president of the statewide ethics organization, Colorado Healthcare Ethics Forum and has taught ethics classes at the University of Colorado Healthcare Sciences and Naropa University in Boulder. In addition to her nursing degree, she has a BA in religious studies from Regis University and an advanced practice certifi cate in palliative medicine from Colorado University School of Nursing. She has participated in thousands of discussions on healthcare choices as a nurse ethicist and a medical navigator. With this book, she hopes to share her knowledge gathered from the past 40 years in patient care in an effort to educate people on healthcare choices, particularly in chronic illness and end of life. As the baby boomers age, they will be looking for a simple guide to those choices and this book is that guide.